Book Review: Welcome Home.

My thanks once again to Tyndale for providing me with a courtesy copy of  ‘Welcome Home: Our Family’s Journey to Extreme Joy‘ to read and review.

This book, written by Kimberley Woodhouse, is the story of one families struggle against and in the face of adversity.

Kim’s son was born with various medical issues but her daughter was born with a very rare medical disorder that meant that she didn’t feel any pain, didn’t sweat and had to wear special cooling clothing to go outside.

Kim & her husband, Jeremy, have had more than their share of trials and difficulties in their life but in the face of it all they continue to say ‘Consider it pure Joy’ this is their story, the story of a family who have had to redefine ‘normal’ as it applies to their lives and who have had to undergo so much in order to give their children the best chance of success and anything near a ‘normal’ life.

Moving house and changing jobs, several times in a short time in order to give the children the best opportunities possible.

It seems that just as they get settled into some kind of routine and have an expectation that things are settling down then another trauma or issue occurs that causes huge problems for them.

In the course of seeking the best care for their children the Woodhouse family racked up huge debts and even ended up loosing their house.

Any American’s reading this blog might recognise the family from their apearance on ‘Extreme Makeover: Home edition’ this book finishes with them having been given the opportunity of a lifetime, having a purpose built home made for them as a part of this TV series (for my UK friends think DIY SOS on steroids!)  where they see first hand the love and affection of many hundreds of people.

This book is a gripping read but could not possibly have been a work of fiction, there is no way that any author would dream up so many difficulties and trials in the course of one family, it would be just too unbelievable.

I found myself so wrapped up in the lives of the Woodhouse family I almost feel as if I know them personally.

Kim tells, in unusual honesty and candour, of her own struggles in the face of adversity, she tells it as it is and  leaves us in no doubt as to the struggles that she had at times, with accepting God’s will and purpose for her life and that of her family, it is so refreshing to see this kind of honesty and no attempt to over spiritualise their lives, she struggled many times and makes that clear, which gives hope to those of us who have also been through, or are going through, real difficulties in our own lives.

I was moved and challenged by this book, moved by the heartbreaking situation that the Woodhouse found themselves in and challenged by their unswerving faith and commitment to God, and their steadfastness to the principle of James 1:2-4 and continue to say, even if through gritted teeth ‘Consider it pure Joy’

I would recommend this book for anyone who is struggling with difficulties and hardship in any area of their lives, or those who have gone through and know what it is to struggle and face trials, that probably includes you at a guess, it certainly includes me.

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Why ‘Standing in the Gap’?

OK so there have been a couple of people ask me how I came up with the title for this blog ‘Standing in the Gap’ well, here goes for my attempt at an explanation.

Some years ago, whilst reading my bible, I came across Ezekiel 22, I cried my way through the whole chapter, because in it I could see our country being described, for those who don’t know, it basically describes the way that Israel is/was at the time,  it doesn’t make pleasant reading.

Anyhow, in Verse 30 we read: I looked for someone who might rebuild the wall of righteousness that guards the land. I searched for someone to stand in the gap in the wall so I wouldn’t have to destroy the land, but I found no one.

This verse is often used to refer to Gods people praying for their land, and indeed it is a very good call to prayer, so why do I take it as the title of this Blog? after all I am hardly a prayer warrior, I don’t spend hours in prayer or intercession, so?

Well when I came across this passage, pre-adoption of our 2 children, I felt that there was more to the concept of building up the walls and standing in the gap than simply prayer, although that is very important and I don’t intend to diminish the importance of prayer in the slightest.

For me, the deeper meaning has more to do with bringing Heaven to Earth than lifting earth up to heaven, if that makes any sense? I will unpack it a bit anyhow!

For me, standing in the gap means yes prayer but it also means being the answer to prayer.

It means standing in the ago on behalf of Man but it also means standing in the gap on behalf of God, it means presenting (or representing) Man to God but also presenting (or representing) God to Man.

No one can truly stand in the gap and appeal to our God on behalf of Man if they are not also prepared to stand in the gap appealing to Man on behalf of God.

OK that sounds pretty complicated stuff I know! how do I represent God to man? well by being like Christ before Man, by doing the things that we see the father doing, by loving those who are unloved, by caring for those who are uncared for, by loving, loving, loving.

I felt so strongly at that time that we, myself and Joy, were being called to a life of serving in the place of the Gap, to look at the wrongs in our society and instead of recoiling into ourselves we were to stand up for the rights of the oppressed, we were to take God into the situations we face, not necessarily, in fact rarely, to preach with words, but always to preach with actions, to love with God’s love and to care with God’s care.

What I didn’t know at that time was exactly where it would lead us, into the centre of a community made up of probably the most marginalised and misunderstood people in this nation, those with learning difficulties.

Through not being able to have our own children and our decision to adopt children, regardless of what they threw at us, we have had the privilege of being Christ in situations that we could never have considered in any other situation.

I am not sure where we are heading with this but I am passionate about the need to stand up for the rights of the oppressed, not just those with learning difficulties but others too, I believe that, as a Christian, I am called to a life of speaking out for the oppressed, to speak out where I see injustices and to be Christ to those who are at the receiving end of oppression and injustice as well as fighting to ensure that the oppression and injustice stops.

Standing in the gap is not easy, it was never meant to be easy, its tiring, its difficult and it leave you exposed and weak at times.

In order to stand in the gap you also have to be prepared to build up the walls, if the gaps too big for you to stand in you need to do some repair work first, building up the walls may involve getting involved in political campaigning, trying to get unjust laws overturned, trying to establish justice through the law courts and through official channels seeking to have new, just and right, laws established and upheld in this land, I think an example of Ezekiel 22:30 in action in this land could have been seen in the likes of Shaftesbury, Newton & Wilberforce, to name but 3 well known names from previous generations but it can also be seen in hundreds and thousands of Gods children working in possibly very small ways to change the world for those they come into contact with.

So my challenge to you, if you Know Christ, is are you prepared to stand in the gap? I mean really stand in the gap, in the way I have outlined? its challenging but the rewards far outweigh the cost.

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CPZ (Controlled Parking Zone) & Discrimination

OK so I am not normally critical of those Parking Attendants, or Parking Control Officers as they prefer to be called, I think! Generally I feel that they do an important and difficult job with a lot of unnecessary grief from members of the public who, by and large, deserve the parking tickets they get, in spite of having received a parking ticket myself a couple of years ago, in what I considered to be rather unfair circumstances, friends on Facebook can see the full details here But even taking that into account I feel that they are generally there for the benefit of all.

However my view is now changing a bit, following an incident that happened this morning, and No I didn’t get a ticket, neither was I at risk of getting one, I am incensed at the treatment that one such parking officer gave to another driver.

Anyhow, we picked Steven up from respite this morning and went into town, we had to drop the insurance claim form (for the laptop that Steven broke last weekend only days after we got it!!!!) due to the postal strike we decided delivering by hand would be prudent.

Anyhow, we managed to get parked in Allhallows, for those who don’t know Bedford its a pedestrian zone but they have disabled parking there, only vehicles with blue badges are permitted down the road but that doesn’t stop most people chancing their arms, largely because there are a few banks with cash machines handy there.

OK we just managed to slide into a space because someone was leaving as we arrived, we went off and did our shop, proudly displaying Steven’s blue badge.

On our return, we had just dropped the letter off, had a coffee and got some fresh bread, there was a traffic warden in the road, as I said earlier its a pedestrian zone with no access to vehicles except those with disabled parking permits.

This guy was telling those who had come down there illegally that they had to go otherwise he would book them, good on him, it was a bit chaotic with so many cars and vans that should not have been there at all!

Anyhow, as we proceeded to load Steven in, via the wheelchair lift, a car pulled up, clearly displaying his blue badge, I indicated we would be gone in a couple of minutes, so he waited, the warden then proceeded to issue the driver with a parking ticket! I protested on the drivers behalf and told the warden that he was just waiting till we had gone and was displaying a parking badge, the warden advised me to mind my own business and just said that he should not be waiting as there was a ‘loading ban’ So I asked him why he wasn’t booking all the vehicles which had driven in illegally, clearly ignoring the sign-age which said no entry, he said that was because they were leaving! however they had committed an offence just by going into the street, indeed they were also creating chaos on the road and making it difficult for pedestrians, as well as those who were the legitimately, so had caused a far more serious offence!

Anyhow, the driver with the blue badge made off before he could get a ticket, which is understandable I would have done the same if I was him!

The point of this story is this, was the parking guy discriminating against the disabled driver? OK so the driver MIGHT have been committing a minor technical offence in waiting for our space to come free BUT the other drivers had committed a far more serious breach in driving down the road in the first place and it was them, NOT the disabled driver, which were causing the chaos and endangering pedestrians with their action.

OK I might be over reacting here but it has incensed me enough that I have made a formal complaint to the council for the actions this particular officer took, and specifically for his discrimination in enforcing the law differently to the disabled driver than he did to the other drivers.

I am not planning to make too much of a deal about it but I am annoyed, as you have probably guessed! At this whole thing.

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One Chromosome too many

For more info on these pictures see http://www.jamesmaybe.com/blog/2009/09/one-chromosome-too-many/
a depiction of the last supper from people with Downs Syndrome

One Chromosome too many, the last supper

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Work

As many of you will know I have just got back to work after 6 Months off sick, with depression.

At the moment I am only in 3 days (well morning but I was only ever working mornings in the office anyhow!) Monday, Thursday & Friday. Its strange because I am getting back into things but its a bit piecemeal and I am having to work quite hard at making sure nothing gets missed at the moment, I think I am just about managing it although my work load for tomorrow is pretty heavy as I realise that there are several things I have not got done that need doing before the weekend.

Anyhow, today I had a meeting with a guy who is going to be borrowing some office space from us, for a while at least, just to discuss things and show him round the office, he seems a nice enough guy so I don’t think there will be any problems getting on with him, we then went to Jaffa for a coffee, well i had coffee he had a hot chocolate, have also registered that he turned down the offer of a coffee at a later meeting so am really concerned that he might be a heretic who doesn’t drink coffee, I am sure that God will forgive him so I guess I will have to as well, although having someone in the office that doesn’t drink coffee will be a bit strange.

today there was also the regular monthly Pastors Prayer Lunch, attended by several people in leadership from churches across the town.

I was responsible for setting up and getting things ready and needed to be prepared to be there for a bit as David G had an appointment late AM, in the event he was back before the meeting had started.

So I had planned to stay for at least some of the meeting, which I did, it was good to see some faces that I had not seen since being off sick.

Anyhow, I stayed for quite a bit of the meeting but then ‘flopped’ pretty tired so escaped, spent a while in the office doing stuff, not too taxing, and then got a lift home with joy, who had been out to lunch with Meryl.

Got home and crashed for an hour or so, am now feeling much refreshed, but I am still constantly needing a sleep during the afternoon.

So, although I am back to work I am still having to be really careful that I don’t over do things, I am getting used to it though and know when I am getting too tired to cope, particularly with social settings, I always need to be mindful of this and have an ‘exit plan’ available to me.

Its incredible to think that I used to work very long hours in a much more demanding job and was on call pretty much 24/7 as well and now I struggle to cope with working past 1pm! But then such is life eh?

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Mother Issues!

This is a copy of a post I have posted elsewhere but felt there was a relevance to it being here, please forgive the lack of personalisation in it but I don’t have the energy and patience to go through re-wording and personalising this item. I am interested in any comments that you might have on this post.

I have said in the past that my blog posts are a little like busses, none for ages and then loads at once, well I have not written much for ages but feel that there are a few blog posts coming for one or other of my blogs.

So, where to start, well a good place to start is with my mother! Always a topic to get me wound up.

I will input into this post some stuff I chatted over with my counsellor today about this subject, spent my whole session chatting round issues related to my mother.

OK so a few weeks ago my niece was staying with my mother, my niece is 15 and it was a surprise that she had wanted to spend some time with my mother, as they have never really got on together, mind you my mother doesn’t really get on with anyone.

We felt a little sorry for my niece so decided that we would invite them both to join us on an afternoon at a local country park, our son was in respite so it was only our daughter with us, my mother was her usual self, very self centred and whenever the conversation went to discussing anything other than her, e.g. when I asked my niece how school was going etc, she rapidly brought the subject back to herself, this happened several times.

Anyhow, whilst there, our daughter wet herself, as you will be aware she has learning difficulties and, at the age of 8, can still be a little unreliable with her toileting, but usually pretty reliable, my wife got on and change her and I alerted members of staff who cleared up the mess, with no fuss or problems. No more was mentioned and we didn’t think it was a big deal.

Right, now fast forward a couple of weeks to Saturday just gone, I had a phone call from my mother asking if I could check her oil and water on her car as she is due to go away shortly, during this conversation she asked whether I had heard from my sister, which I hadn’t, she then went on to say that she had fallen out with her, why? Because my niece has decided that she wants to change her name from her birth fathers surname to my sisters maiden name, you will need to read this carefully to follow it all, my sister is a divorcee, her ex, my nieces father, was abusive to the kids, and continues to be (verbally primarily) so there are good reasons why my niece might want to have little to do with him, my sister being a divorcee has taken her maiden name back, this is the name she acquired through her father, my step father, although I use this surname simply because its what everyone knew me as all my life, anyhow, my mother and step father split up about 22 years ago when he had an affair with a younger woman, he now lives somewhere abroad, America or Australia, with his second wife and their 2 children.

OK so my mother was upset that my niece has decided to take his surname because of the hurt he has caused her, now the only hurt he has caused my mother is to have an affair with someone, I do not mean to belittle this BUT it happens all the time! In-fact I have a suspicion, although my mother would deny it, that her relationship with my step father started as her having an affair with him whilst still with my birth father.

So, again considering the fact that my niece has suffered at the hands of her father I can understand why she might want to take the surname that her mother is currently using. Anyhow, my reaction to my mother was pretty swift and unusually assertive with her, she usually makes me feel like that little boy again and I find it difficult to be so assertive, but anyhow I simply told her that it was a silly thing to fall out over and my niece has the right to make this decision herself! My mother was hurt by this but I stood my ground and she swiftly turned the subject back to her car, I said I would get back in touch, but was already not very keen on doing anything for her.

Anyhow, I then rang my sister to discuss with her, I have found it pays to get her story ready for my next encounter with my mother. And had an enlightening discussion. Yes my niece did want to change her name and yes my sister had told my mother this was her decision and hers alone, so my mother put the phone down on her!

Ok so the relevance of the wetting incident? Simply that my sister, informed me that my niece really didn’t enjoy staying with my mother, surprise, surprise, but mainly because my mother was so critical of so many people, including apparently telling my niece that my daughter wetting herself was embarrassing! As was the fact that my daughter is so clearly over weight! Now this just about shows the level of my mothers selfishness ignorance and arrogance and made me see red! After all the times we have gone out of our way to take my mother out and al the hours spent with her saying how ‘lovely’ & how ‘sweet’ our daughter is and all the time she was embarrassed by things like that! Yes our daughter does have a weight issue and she does have bladder (and bowel) control problems, but that’s all part of the disability, as our niece pointed out but my mother apparently dismissed it and said it had nothing to do with it! Presumably she blames the parents!

So now I was faced with a real dilemma, do I go and sort my mothers car out or do I throw my dummy out of the pram and refuse? And if I do go, do I mention the matter or not?

Well, for the sake of good relations I choose to go, although we made pretty sure we didn’t have to spend long there, went on the way back from being out and had some dinner in the oven! So the kids and my wife stayed in the car as I sorted her car out, I also choose not to raise the subject although would have had a thing or 2 to say if she had mentioned anything along those lines!

Basically I am at the point where I am considering severing ties with my own mother because her attitude is totally unacceptable, we have chosen to give life and opportunities to 2 children with special needs and they do NOT need this kind of attitude from their own grandmother.

This raises again the whole, honouring your parents issue, which would be easy to do if she were keeping the commandments too as she wouldn’t be so awkward and difficult to be honouring to.

Anyhow, in chatting with my counsellor today we discussed some of the issues and reasons why I find it difficult to tackle issues directly with my mother, on this occasion it wasn’t that I found it difficult to tackle it I deliberately chose not to raise the issue myself but generally I always feel as though she turns
me into a little child again, primarily because she has always, for as long as I can remember belittled me and run me down, she has always treated my views and opinions as if they don’t count and actually she pays very little attention to anything that I, or my sister say, as if our views are unimportant, also through my childhood she has pretty much made me feel as a small child, not allowed to have a view or opinion of myself, I have to listen to what my parents say as they are always right!

Another part of this is the whole honouring issue, how can you disagree with your parents and still honour them? Well I have good cause to disagree with my mother, she is so often wrong, and bigoted and ignorant and doesn’t listen to another persons opinion or point of view! But that doesn’t mean I don’t honour her, and respect her, as another human being that is! As my mother, no, all she did was to give birth to me and accommodate me for a few years, she has never earned the right to be honoured as my mother.

Anyhow, some of you might think that I am being rather harsh on her, well if that’s you feel free to contact me and you can take her as your mother! Lets see how long you survive!

Basically my mother falls out regularly with all sorts of people, for all sorts of silly reasons, this issue with my sister is just the latest (that I know of) in a long line of issues over which she falls out with people.

At the moment she is away on holiday (kind of!) with her sister but she has regularly fallen out with her too, my mum has said several times that her sister ‘always has to be right, she can’t accept that she is ever wrong’ sounds familiar to me!

Another example of how awkward and stubborn my mother can be is also connected to names, my sister has chosen, since leaving home, to be known by her middle name rather than her first name, I have to say I can’t blame her because in my view her middle name is much nicer, this again is a decision that she is entitled, as an adult, to make, its all part of her stamping her own identity and personality on her life but my mother refuses to refer to her by her middle name, this leads to a lot of confusion especially when my mum was living not far from my sister, everyone there knew my sister by her middle name so got pretty confused when my mum called her by her first name, changing your preferred name in this way, either using your middle name or abbreviating your name or taking on a nick name etc is pretty common place in society, but my mum just wants her little girl to shrink away and conform to her mums standards and expectations. In fact I think I am going to make a conscious decision to call my sister by her preferred name, at least when addressing her in person even if my mother is around, regardless of the consequences because this is what my sister WANTS! And she is old enough to make this decision, it might be difficult for a while as I am so used to her being called, and me calling her, by her first name.

Anyhow, at this point in time I am having to make a conscious decision that I will NOT be sucked into my mothers games and manipulation that I WILL NOT allow her to control me or to turn me into that little child that I will act as the adult and address the issues in an adult and grown up way, without loosing my temper and without allowing myself to be turned into the little child again, regardless of how she reacts, even to the point where I can make the conscious decision to NOT tackle an issue if I feel it would not be constructive, or would even be detrimental to do some but this would be a decision would be a conscious decision made in my adult self rather than one made because I have become the weak child that she wants me to become.

Fortunately for us we have always made a point of refusing to allow my mother to have any stronghold over us in the form of having given ups money to help us out, there have been times that she has offered to help us financially with some significant expenditure, most recently the cost of re-wiring the house, but we have always turned down these offers because we do not want to allow her to be able to use this against us. A good policy and one my sister wishes she had adopted but she has taken money from my mother at various times and always regrets it.

Anyhow, I do feel that, in the right time and in the right way I need to tackle some of this stuff directly with my mother, addressing her general attitude towards other people and telling her that her attitude is only going to result in her being very lonely into her old age, certainly myself and my sister feel that we are reaching the end of what we can tolerate from her. But also addressing directly her attitudes and prejudices about our children, telling her that if she is that embarrassed by our kids then she best not come out with us! But timing and wording will be crucial, I need to ensure that my attitude and actions are from right motives and done in a right way but also being prepared to accept that this MAY result in the severing of relationships, for at least a time, depending on her response, this is obviously not an issue I can tackle with the kids present either, so wisdom beyond wisdom is needed to know how best to tackle this.

I think that’s about all I need to say on this, the post is a lot longer than I expected but that’s not unusual, as I said at the beginning there may well be a couple of others to follow this if I can get my head round it all.

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Prospects

Ok so those who know anything about us will know that myself and Joy are the proud parents of 2 children with learning difficulties, we adopted them so in a sense chose to accept them with their difficulties and disabilities.

One of the things we have felt is a part of our ministry is getting the church to accept those who have disabilities, especially learning difficulties/disabilities, as valued and important members of the church community.

In our fellowship we have had a guy coming along for some time who has learning difficulties and it hasn’t always been easy to know how to handle him, its been interesting to see how he seems to have been accepted by some, alongside our own 2 children who are by and large made to feel right at home, although some are still very nervous and frightened of Steven because his behaviour can seem rather strange, I don’t say this to condemn or criticise these people because I am not sure I would have reacted any different towards him if it wasn’t for the fact that we adopted him, although, given time, they seem to have been accepted on the whole.

Anyhow, when we did our building project a couple of years back one of the main objectives of the project was to remove as many of the physical barriers to worship for those with disabilities, improved A/V facilities, better layout & lighting, disabled toilet, generally much more accessible buildings, it has been my hope that our church, and the church at large, would take on the call to reach out to those with disabilities, especially learning difficulties, as they represent one of the largest un-reached communities in this nation, but it requires more than just improved buildings to allow those with learning difficulties to participate in our services, it takes an attitude of acceptance and welcoming.

It is far easier to accommodate someone with physical disabilities because all you have to do is adapt the building, in order to accept those with learning disabilities you need to adapt the people, which can be so much harder! However it is a challenge that the church has to rise to, the Disability Discrimination Act gives us a legal responsibility to ensure that we adapt to the needs of those with disability but it is so difficult to legislate for attitudes of mind, yes we have complied with the physical requirements of the act, as so many companies and organisation have done so, but we also need to comply with the spirit, indeed, we as the church, as those who seek to Love God and Love others, should be streaks ahead, we should be showing the world how to be accepting and welcoming instead of just complying with the law we should go over and above it, find the Gold standard and aim for that, if our faith means anything to us it means that we love other human beings wholeheartedly, regardless of their background and abilities and we accept people who are not like us as if they are our brothers and sisters, this is easier to do with people of other nations and colours but those with learning difficulties frighten the average person on the street, mainly because of ignorance I am not using that word in a critical way, we are all ignorant of something we know nothing about, we don’t know about or have regular contact with people with disability so we are ignorant of them and their needs/ways and this makes us frightened, being honest, even though I am the father of 2 children with disabilities (one of which has quite profound learning disabilities) I too am afraid of some of the adults I have come across, both in my role as driver for Social Services and in my day to day life, in-fact I recall a few months ago a discussion at one of the leadership meetings about the guy who had been coming to church, it was said that people feel uncomfortable around him, he is a pretty big guy, and I had to confess that I am just as nervous as everyone else BUT it is our responsibility to overcome these fears and prejudices and not allow those fears and prejudices to become barriers to them coming to know the God who loves them just as they are.

So, why say this now? well this morning we had a group from Acorn Fellowship joined us for our morning service, they are Causeway Prospects group working with adults with learning difficulties. We have had some involvement with them, at one time I used to drive one of the minibuses for Acorn and we have come across causeway at Grapevine and they ran a session on Worship Academy so we were pretty much familiar with what they do, it was good to see them here this morning and to have a number of the guys from Acorn share with us this morning, several spoke, including Ruth, who runs the Bedford Monday meeting (meets in our premises) and Julie who had the original vision to run this project, which has been running for 18 years now.

After the service myself and Joy were chatting to Julie, we were saying how it would be good to see some of these folk incorporated into local fellowships as well as being a part of the Acorn group, several already go along to one church or another, when one of the guys (Graham) approached Julie and said he would like to come along to our church every week! Well if that’s not God speaking I don’t know what is!

So, next week we are going to pick up Graham and another guy, and bring them to church with us, the idea is that they will start coming every week, they will hopefully come on the church minibus but for the first couple of weeks we will bring them in so that they get familiar with us and people they can relate to and know they can approach us if they have any problems.

It is going to be interesting to see how they get on and how well the fellowship adapts to incorporate them into the fellowship, they could well mess up our nice neat and organised services and cause a bit of disruption but this is a challenge that we will have to rise to, they are just as valuable in the eyes of God as the rest of us and they deserve the time and space to meet with him just as much as we do.

I think that there is going to be a period of adjustment on the fellowship until we get used to having Graham & Andrew around but the challenges they will bring will be exceeded by the blessings that come from following Jesus commands to minister to ‘the least of these people’ so exciting times are in store for the fellowship.

Time to crank up the profile of disability issues, I have for a while wanted to see if we could organise and run a disability awareness day for churches in the town, in-fact it was only earlier this week that David G forwarded an e-mail (sent to my work address) from Pete Windmill, asking if I had any further thoughts on the issue of having such a seminar, this is one of the things I had mentioned to Julie, apparently it is every much on her heart to have such an event so I think it is likely to be down to her to organise! I will offer our buildings to host the event, and help where and if I can but that help is likely to be limited at the moment because of my own health issues.

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